Previous CCB events
CCB and CM-Path held a joint meeting in Glasgow on 17 October, on “working together” to maximise opportunities. The CCB has always shared best practice in a climate of mutual support. This is as important as ever in the rapidly changing biobanking landscape.
The programme included:
- Presentations from representatives of the CM-Path initiative, BBMRI-ERIC and the UKCRC Tissue Directory and Coordination Centre
- Discussion of new challenges and new technologies
- A view from Scotland: Scotland’s biobank accreditation scheme and the Scottish Genomes Partnership
»Programme – Working together: Collaboration in the Cancer Biobanking Landscape (pdf)
» CRUK Stratified Medicine Programme_Rowena Sharpe (pdf) NB This presentation contains some unpublished data
This interactive event was attended by donors, members of the biobanking community, regulators and researchers.
Read more about the event in a short report by the UKCRC Tissue Directory and Coordination Centre and watch the UKCRC presentation from the workshop:
Research using human tissues is becoming more complicated and there has been a welcome shift towards treating research participants as active partners rather than passive subjects. This is placing increasing pressures on the process of consent- with conflicting pressures to make the information underpinning informed consent more comprehensive and more comprehendible. “Informed consent in a digital age” will explore the meaning and importance of informed consent from the perspective of the donor, regulator and scientist and explore new ways in which consent may be obtained using on-line techniques.
With input from senior representatives of the HRA and HTA and leading research groups in the field of tissue based research this meeting will be of interest to donors, members of the biobanking community, regulators and researchers.
To meet complex research requirements Biobanks need to evolve and become ever more flexible in their model. In collaboration with the MCRC Biobank, a one day workshop was held to explore how biobanking in Manchester has evolved to meet the complex research needs of local researchers.
Strengthening Public and Patient Engagement in Biobanking - Developing Plans for Action - 18 June 2014
- The value of social media in connecting with the public
- Communicating change in healthcare systems
- Future-proofing tissue collection through a patient-orientated a consent model ‘Swipe to Donate’
- Navigating through regulatory requirements
- Standardisation of pathology and quality issues
- Future-proofing tissue collection to handle new technologies
- Extending the use of samples beyond the trial
Tackling Regulatory Aspects
- Data collection within the NHS and how relevant clinical data can be made available
- Data infrastructure for national biobank projects
- Managing data when it comes back from researchers
- Connecting biobank data with informatics platforms for translational research
- Aspects of quality management for both solid and liquid biosamples
- Pre-analytical factors in the handling of biosamples
- Practical considerations for recording information on sample handling